Making EEG “hats” look good since 2019 “Did you see that…that staring thing he just did…did that seem strange to you?” I remember asking this very question to my husband when we first started noticing Everett having an increase in abnormal staring spells about 3 months ago. The staring spells that before we had written … Continue reading ***… AND JUST LIKE THAT ***
660 DAYS
660 days ago I handed this sweet little boy off to a brilliant neurosurgeon and a team of residents, anesthesiologists and nurses and trusted with every fiber of my being that they would care about my baby as if he was their own child. Watching the doctors wheel a huge hospital crib with my sweet … Continue reading 660 DAYS
Epilepsy Awareness Month
A local news station here in Fresno reached out to us this week and asked if we would like to share a little bit about Everett's story for epilepsy awareness month. Here is the final product that aired on the evening news! fb.watch/947reR624i/ We are so proud of our little Mountain Mover! You can also … Continue reading Epilepsy Awareness Month
Purple Pumpkins…
(I am reposting this on my blog for those of you who don’t follow me on Instagram…so here’s a little bit of a backstory on on the purple pumpkins. Every October and November (November is Epilepsy Awareness Month if you didn’t know) many of us in the epilepsy community use the hashtag #purplepumpkinproject and paint … Continue reading Purple Pumpkins…
What a difference a year makes… Everett’s First “Hemiversary”
I can remember April 6, 2020 like it was yesterday. It was a cold, rainy morning in LA and the pit in my stomach seemed to grow larger and larger with every passing minute. I hadn’t slept much the night before, I think the anxiety over what was about to happen the following morning prevented … Continue reading What a difference a year makes… Everett’s First “Hemiversary”
There Truly is No Place Like Home…
Well, we’ve officially been home for a little over one full week! And man what a week it has been. It’s crazy to think that last week at this time I was sleeping in my own bed for the first time in over 2 months. Can I just say that I have honestly never been … Continue reading There Truly is No Place Like Home…
It’s the FINAL Countdown!!!Rehab Week 7 & 8
We are seriously in full blown countdown mode folks! As I sit and write this post, we are less than ONE day away from going home! WHAT!?!? There have been times that I thought this day would never come. 67 long days ago we kissed our little boy good bye, and trusted the most brilliant … Continue reading It’s the FINAL Countdown!!!Rehab Week 7 & 8
Progress not Perfection, Hospital Fatigue, and a Curfew to Spice Things Up…Rehab Week 6
Friends...what a week last week was. I honestly don’t even know where to begin really. My heart is saddened for our nation. From our little hospital bubble, we watched the country erupt into chaos over the senseless and horribly tragic killing of George Floyd in Minnesota. Los Angeles, like so many cities across the country … Continue reading Progress not Perfection, Hospital Fatigue, and a Curfew to Spice Things Up…Rehab Week 6
Learning to Love “Holland”
I cannot take credit for these words, a person much wiser than me wrote these words many years ago but they are so so true and so powerful. "Welcome to Holland" by Emily Perl Kingsley I am often asked to describe the experience of raising a child with a disability - to try to help … Continue reading Learning to Love “Holland”
“We’d like to keep him a little bit longer…” Rehab Week 5
What a week this has been...after the rough, emotional week i had last week, this week started off really well. Everett and i had a good relaxing day on Sunday, I got my weekly 5 minute parking lot visit with Brandon on Sunday afternoon, and our family conference was scheduled for Tuesday where we would … Continue reading “We’d like to keep him a little bit longer…” Rehab Week 5
Life, Love, Epilepsy and Everything In Between 