Time to Extubate!

Good news! Neurosurgery feels that the MRI looks good, and that we are safe to turn off the sedation and extubate! They will leave him on some oxygen support overnight just to make sure that his sats look good but he will be tube free. Say a prayer for successful extubation and for him to … Continue reading Time to Extubate! →

Thoughts from the PICU…Post-Op Day 1

Good afternoon friends... I am so sorry it took me so long to get this update out to you guys. I’m honestly not even sure what time it is right now...time is so strange when you’re in the hospital 24/7. After what felt like quite possibly the longest day of my entire life yesterday, I … Continue reading Thoughts from the PICU…Post-Op Day 1 →

Surgery Update…

I just spoke with Everett’s surgeon, he feels that everything went well and he considers the surgery to be a success. Everett will need to be on a ventilator overnight, but mostly as a precaution and because they will need to get an MRI in the morning and they don’t want to have to re-intubate … Continue reading Surgery Update… →

The Waiting is the Hardest Part…

As I sit here, staring at this boring wall in front of me, I find myself doing anything I can think of to keep my mind occupied. I’ve counted the squares of wood paneling, I’ve counted the tiles on the floor in front of me, and I have now moved on to trying to decipher … Continue reading The Waiting is the Hardest Part… →

Surgery Day…

There’s no turning back now. We are checked in...consents are all signed...I’ve spoken with the entire surgical team, surgery is happening, a little bit late but it’s happening. I dont know how I am going to be able to hand my baby over to his surgeon, especially since my mama bear instincts are roaring right … Continue reading Surgery Day… →

Silence…

The silence in my house this morning was deafening. Sleep has been hard to come by the past several days / weeks and I often find myself awake before everyone else and alone with my thoughts. The past 3 days it has been my thoughts and the GIGANTIC knot in the pit of my stomach...so … Continue reading Silence… →

Into the Unknown

Ok...ok, I know that's the title of a song from Frozen II, but it seemed so very appropriate for that we are getting ready to face in the next several weeks. I guess I should probably give you some context and introduce ourselves before i get too involved in what is going on right now, … Continue reading Into the Unknown →

The Journey Begins

Thanks for joining me! Good company in a journey makes the way seem shorter. — Izaak Walton