(I am reposting this on my blog for those of you who don’t follow me on Instagram…so here’s a little bit of a backstory on on the purple pumpkins. Every October and November (November is Epilepsy Awareness Month if you didn’t know) many of us in the epilepsy community use the hashtag #purplepumpkinproject and paint … Continue reading Purple Pumpkins… →

This post is going to be a bit different and a bit longer post than usual, but don’t worry I’ll make sure to get a post-op update done before the end of the day! I just wanted to get this post up today because today is the one year anniversary of the day our lives … Continue reading ONE YEAR →

There’s no turning back now. We are checked in...consents are all signed...I’ve spoken with the entire surgical team, surgery is happening, a little bit late but it’s happening. I dont know how I am going to be able to hand my baby over to his surgeon, especially since my mama bear instincts are roaring right … Continue reading Surgery Day… →

The silence in my house this morning was deafening. Sleep has been hard to come by the past several days / weeks and I often find myself awake before everyone else and alone with my thoughts. The past 3 days it has been my thoughts and the GIGANTIC knot in the pit of my stomach...so … Continue reading Silence… →

Ok...ok, I know that's the title of a song from Frozen II, but it seemed so very appropriate for that we are getting ready to face in the next several weeks. I guess I should probably give you some context and introduce ourselves before i get too involved in what is going on right now, … Continue reading Into the Unknown →