Tag: hemispherectomy

What a difference a year makes… Everett’s First “Hemiversary”

I can remember April 6, 2020 like it was yesterday. It was a cold, rainy morning in LA and the pit in my stomach seemed to grow larger and larger with every passing minute. I hadn’t slept much the night before, I think the anxiety over what was about to happen the following morning prevented … Continue reading What a difference a year makes… Everett’s First “Hemiversary” →

Progress not Perfection, Hospital Fatigue, and a Curfew to Spice Things Up…Rehab Week 6

Friends...what a week last week was. I honestly don’t even know where to begin really. My heart is saddened for our nation. From our little hospital bubble, we watched the country erupt into chaos over the senseless and horribly tragic killing of George Floyd in Minnesota. Los Angeles, like so many cities across the country … Continue reading Progress not Perfection, Hospital Fatigue, and a Curfew to Spice Things Up…Rehab Week 6 →

“We’d like to keep him a little bit longer…” Rehab Week 5

What a week this has been...after the rough, emotional week i had last week, this week started off really well. Everett and i had a good relaxing day on Sunday, I got my weekly 5 minute parking lot visit with Brandon on Sunday afternoon, and our family conference was scheduled for Tuesday where we would … Continue reading “We’d like to keep him a little bit longer…” Rehab Week 5 →

Standing, Walking, Mother’s Day and Everett turns Two! Rehab Week 3/Part 2

Im tellin ya, sometimes it feels like the time is just flying by and other weeks (like this one...), it feels like time is moving slower than a snail. We got news early this week that they are extending Everett’s admission here at CHLA by an additional week, we were assured that this is a … Continue reading Standing, Walking, Mother’s Day and Everett turns Two! Rehab Week 3/Part 2 →