Here I go again with the multiple days in one update. Rehab life is busy busy busy and I feel like it is just so much easier to lump a few days into one post. I know I said it before but I’ll say it again, when Everett’s medical team at UCLA and the friends … Continue reading You Try Working Out For 3 Hours a Day and See How You Like It! Rehab Day 5, 6 & 7
Tag: hemispherectomy
Sleepy Sundays pave the way for Busy Mondays! Rehab Day 3 & 4
So sorry for the 2 days in one update but things slow down a whole lot here on Sundays so there wasn’t a whole lot of exciting things to talk about yesterday so I figured I’d lump two days in to one blog. 😬 Sunday is Everett’s “rest day” from therapy which meant that he … Continue reading Sleepy Sundays pave the way for Busy Mondays! Rehab Day 3 & 4
Mr Bubba Goes To Work! Rehab Day 2
Hello Everyone, Dad is in “The House” aka the hospital! 😢🥰 Sad face for Everett having to still be hospitalized but lovey face cause I finally got to see my boy!! Thanks to the slightly more relaxed policies of Children’s Hospital Los Angeles, I was able to switch with Sara and spend Friday night looking … Continue reading Mr Bubba Goes To Work! Rehab Day 2
Saying Goodbye to UCLA. Post-Op Day 11 / Rehab Day 1
I know, I’m late again getting this posted. 😬 Yesterday was a pretty big day with lots of excitement and changes. After 10 1/2 days, we bid farewell to UCLA yesterday morning. Our chunk of time at UCLA, starting with the day of his surgery all the way through his week long stay in the … Continue reading Saying Goodbye to UCLA. Post-Op Day 11 / Rehab Day 1
Mama Bear doesn’t play nice! Post-Op Day 10
Ok, obviously from the tone of the title of this blog you are probably thinking that today probably hasn’t been the best day ever....and well, you would be right. 😞 Over the past 48 hours Everett has become more and more agitated and seems to be in considerably more discomfort than he has been the … Continue reading Mama Bear doesn’t play nice! Post-Op Day 10
The Mysterious Fever…Post-Op Day 9
Well, my excitement over a good nights rest was certainly short lived 😩. After a pretty good day on Tuesday, I figured he would be able to sleep pretty good again on Tuesday night and we could get a lot of things accomplished on Wednesday...boy was I wrong. The mysterious fever from Monday night came … Continue reading The Mysterious Fever…Post-Op Day 9
Lesson Learned…Post-Op Day 8 (a little bit late 😬)
Good morning! I’m so sorry for getting yesterday’s update out so late. Since coming to the peds floor from the PICU, I feel like the day just got away from me faster. Bubba actually had a pretty good nights rest on Monday night. I wasn’t sure how he would do because he slept so much … Continue reading Lesson Learned…Post-Op Day 8 (a little bit late 😬)
It’s Moving Day…Post-Op Day 7
Well, it’s Monday which means that the Starbucks coffee cart is back open and all is right in the world again (At least in my need for caffeine world that is). It is crazy to me to realize that one week ago today I was handing my baby over to have brain surgery. This week … Continue reading It’s Moving Day…Post-Op Day 7
Surprise! Post-Op Day 6
Happy Easter everyone! I know this is such a different type of Easter Sunday for so many people, but I hope you were able to enjoy the day, perhaps with your families and church in your finest Easter jammies, and took a moment to remember why we celebrate today. “For He is not here, He … Continue reading Surprise! Post-Op Day 6
What do you mean the coffee cart is closed on Saturdays?!?! Post-Op Day 5
Well, when they said things around here slow down (even more than they already have due to COVID19) on the weekends...they weren’t joking! It’s so quiet inside the hospital for the most part. Even the Starbucks coffee stand is closed on the weekend (cue sad crying on this mamas part), thankfully they still serve regular … Continue reading What do you mean the coffee cart is closed on Saturdays?!?! Post-Op Day 5
Life, Love, Epilepsy and Everything In Between 