Im tellin ya, sometimes it feels like the time is just flying by and other weeks (like this one...), it feels like time is moving slower than a snail. We got news early this week that they are extending Everett’s admission here at CHLA by an additional week, we were assured that this is a … Continue reading Standing, Walking, Mother’s Day and Everett turns Two! Rehab Week 3/Part 2
Tag: infantile spasms
Rollin, Rollin, Rollin – Rehab Week 3/Part 1
Whew...it’s been a busy several days around here! Mister has been showing off quite a bit, not only just his new skills but his feisty attitude also! You’ll also notice by the title of this post that I have stopped counting days and have moved on to counting in weeks. It is easier for me … Continue reading Rollin, Rollin, Rollin – Rehab Week 3/Part 1
Walk it Out! Rehab Day 11-14.
Rehab is so much different from a “normal” hospital admission, Everett’s days are busy with his various therapy sessions and I find that the days tend to get away from me, and I wind up doing a big multi-day update like this one 🤦🏼♀️. So, I’m sorry in advance for the LONG update, it’s a … Continue reading Walk it Out! Rehab Day 11-14.
You Try Working Out For 3 Hours a Day and See How You Like It! Rehab Day 5, 6 & 7
Here I go again with the multiple days in one update. Rehab life is busy busy busy and I feel like it is just so much easier to lump a few days into one post. I know I said it before but I’ll say it again, when Everett’s medical team at UCLA and the friends … Continue reading You Try Working Out For 3 Hours a Day and See How You Like It! Rehab Day 5, 6 & 7
Sleepy Sundays pave the way for Busy Mondays! Rehab Day 3 & 4
So sorry for the 2 days in one update but things slow down a whole lot here on Sundays so there wasn’t a whole lot of exciting things to talk about yesterday so I figured I’d lump two days in to one blog. 😬 Sunday is Everett’s “rest day” from therapy which meant that he … Continue reading Sleepy Sundays pave the way for Busy Mondays! Rehab Day 3 & 4
Mr Bubba Goes To Work! Rehab Day 2
Hello Everyone, Dad is in “The House” aka the hospital! 😢🥰 Sad face for Everett having to still be hospitalized but lovey face cause I finally got to see my boy!! Thanks to the slightly more relaxed policies of Children’s Hospital Los Angeles, I was able to switch with Sara and spend Friday night looking … Continue reading Mr Bubba Goes To Work! Rehab Day 2
Saying Goodbye to UCLA. Post-Op Day 11 / Rehab Day 1
I know, I’m late again getting this posted. 😬 Yesterday was a pretty big day with lots of excitement and changes. After 10 1/2 days, we bid farewell to UCLA yesterday morning. Our chunk of time at UCLA, starting with the day of his surgery all the way through his week long stay in the … Continue reading Saying Goodbye to UCLA. Post-Op Day 11 / Rehab Day 1
Mama Bear doesn’t play nice! Post-Op Day 10
Ok, obviously from the tone of the title of this blog you are probably thinking that today probably hasn’t been the best day ever....and well, you would be right. 😞 Over the past 48 hours Everett has become more and more agitated and seems to be in considerably more discomfort than he has been the … Continue reading Mama Bear doesn’t play nice! Post-Op Day 10
The Mysterious Fever…Post-Op Day 9
Well, my excitement over a good nights rest was certainly short lived 😩. After a pretty good day on Tuesday, I figured he would be able to sleep pretty good again on Tuesday night and we could get a lot of things accomplished on Wednesday...boy was I wrong. The mysterious fever from Monday night came … Continue reading The Mysterious Fever…Post-Op Day 9
Lesson Learned…Post-Op Day 8 (a little bit late 😬)
Good morning! I’m so sorry for getting yesterday’s update out so late. Since coming to the peds floor from the PICU, I feel like the day just got away from me faster. Bubba actually had a pretty good nights rest on Monday night. I wasn’t sure how he would do because he slept so much … Continue reading Lesson Learned…Post-Op Day 8 (a little bit late 😬)
Life, Love, Epilepsy and Everything In Between 